MY DAUGHTER HAS INFANTILE DEMENTIA AND MAY NOT LIVE BEYOND 16 YEARS
https://resizer.glanacion.com/resizer/v2/YWCX56R7NBCNDIX7H46OGJLUOQ.jpg?auth=e4e29d726c46c5ccfd13f958bad3164655f44bc6ba620370c02d341faa601a79&smart=true&width=800&height=533
✍️ A Scottish family's story of struggling to cope with their 15-year-old daughter Sophia, who has a rare and incurable genetic disorder called Sanfilippo syndrome, a form of childhood dementia.
👉 Sophia Scott was diagnosed with Sanfilippo syndrome, a rare and incurable genetic disorder 👉 The condition causes childhood dementia and eventually leads to loss of speech and mobility 👉 The family has been working to raise awareness about the condition and advocate for more support and resources 👉 The condition is caused by over 145 rare genetic disorders, including Sanfilippo syndrome 👉 The UK government has announced plans to provide funding for two new staff members to support families affected by childhood dementia
-- #SophiaScott #DarrenScott #AmandaScott #NeilGray #JimPearson #Scotland #UK #Australia #health
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